She said that she has wrestled with bouts of depression since she was 11 or 12, and that she can sometimes lose her sense of smell when they take over. EDWARDS: You know, that is a wonderful question. So I know how I guess stressful and challenging that can be. The show already has a health and science focus, but usually a relatively long lead time. Her previous book, "Life Disrupted," is about living with chronic illness in your 20s and 30s. First of, emotionally, it was a sense of validation. EDWARDS: It was life-changing, in so many ways. She's the author of the new book "In the Kingdom of the Sick: A Social History of Chronic Illness in America." And when my symptoms didn't respond to medications the way doctors expected them to, it sort of became this issue of, well, maybe I was doing something wrong. This is FRESH AIR. GROSS: So one of the things that you do, Laurie, is that you blog, and you blog all about, you know, chronic illnesses and you write about your own experiences. On "Ain't Misbehavin'" Hines leapfrogs Ellington band cornetist Rex Stewart. But, you know, you can't compare that what we see with, say, breast cancer awareness and sort of the month of pink. I mean, sure. But more than that, it just changed my quality of life dramatically, because I knew what was wrong. There is a lot of research that shows that women's pain symptoms are dismissed or called psychogenic or emotional, and that's much more likely to happen to women than men. So I felt like I just wanted to be up front about it, and it ended up being really great for us. And, you know, there are only 400 Americans who have been appropriately identified with what I have, with PCD. Her 2006 documentary, "A Lion in the House," followed the lives of children with cancer. I've graduated high school and college, studied abroad for a year, pursued a graduate degree and got married, spent four long years trying to have a child and made it through a medically intensive, complicated pregnancy to deliver a healthy little girl. GROSS: So what are some of the possible explanations for why women might metabolize medicine at a different rate than men would, or might, you know, experience pain differently than men would? Now she turns up in a less-expected place, an unusual female coming-of-age memoir by Patricia Volk called, "Shocked: My Mother, Schiaparelli, and Me." Was I simply too stressed or anxious, and was that causing my respiratory exacerbations? Jenkins' family claims the man suffers from untreated mental illness and they were trying to get him help the day of the attack. VOLUSIA COUNTY, Fla. — Arenthius “Dante” Jenkins is accused of attacking and savagely beating two men with hammers on April 22, in Daytona Beach. So there's connections - you know, your new book is a social history of chronic illness in America, and you make connections between chronic fatigue and fibromyalgia and conditions that were diagnosed, say, in the 19th century as neuresthenia, you know, a woman's condition, which is what? But you say that often, it's the pain that's creating the stress. Hines could play fast stride and boogie bass patterns, but then his southpaw would go rogue. So, you know, I would be in the hospital and, you know, I'd be stressed out about missing my internship in college or worried about finals. The big bands were doomed, but didn't know it yet. You know, my rare disease group, Primary Ciliary Dyskinesia Foundation, for example, has wristbands for awareness month. During his illness, Terry received $4,500 in sick pay from a disability insurance policy. Barron ended his statement by asking the public to remain open minded. GROSS: And so, like, in an old movie when a woman takes to her bed, that would be neuresthenia? Get car, home, life insurance & more from State Farm Insurance Agent Terry Gross in Frankfort, IL. It's certainly not how I normally would have operated. Moffitt Cancer Center: Community of Courage. Was I not taking my medicine correctly? It just says, you know, the only information we usually see is whether or not it's suitable for pregnant women to take. Living With Chronic Pain 'In The Kingdom Of The Sick', Earl Hines: Big Bands And Beyond On A New Box Set, Beauty Marks: Patricia Volk's Lessons In Womanhood, Modern Medicine May Not Be Doing Your Microbiome Any Favors, End Of Life Care In America, A Doctor's Diagnosis, Doctor With Rare Disease And No Answers Decides To Find His Own Cure, Author's Advice To Millennials: Manage Your Money And Stop Pleasing Others, Lenny Kravitz On Race, Being On The Road, And Ruff Ruff The Magic Dog, After Years Of 'Willed Amnesia,' Trethewey Opens Up About Her Murdered Mother, No Kidding: Japan's Kidnaping Epic 'Lady Joker' Will Hook You, An Outsider Is Drawn Into The Quest To Find A Missing Teen In 'The Searcher', 'Leave The World Behind' Is A Signature Novel For This Blasted Year, Louise Erdrich On Her Personal Connection To Native Peoples' 'Fight For Survival'. We have different percentages of body fat. So, you know, it is an interesting phenomenon, but I don't think - it doesn't make me nervous to say that, because I think the more information that we have, the better that we can treat and manage and diagnose pain for both genders. We do have some interesting research on functional MRI scans that show differences in the way fibromyalgia patients actually experience and feel pain. Laurie Edwards, welcome to FRESH AIR. Already facing charges of aggravated battery and aggravated assault, Jenkins was charged with second-degree murder when one of the victims, Billy Ford, died Tuesday. Thank you for asking!” Say what you want about Hill At 73 years old, the award-winning filmmaker is battling a fatal form of urothelial cancer. You know, it wasn't until 1993 that the National Health Revitalization Act first required that researchers include women and minorities in clinical research trials, and that phase three drug trials for drugs to be brought to market had to be analyzed by sex. It just - it wasn't the same priority as, say, looking at the paternalistic establishment of medicine itself. Or do you try to like grade it up so doctors take very seriously the pain that you're having? GROSS: Do you think it's actually true that the women's health movement hasn't touched women's pain syndromes? You can read an excerpt on our website, freshair.npr.org. You know, I also, on the other hand, though, you know, know that I am managing my health really well, that I have done all I can to prevent disease progression, you know, that I have, you know, a healthy spouse, that we have an extended community of relatives and friends that support us and therefore, support her. TERRY GROSS, HOST: This is FRESH AIR. GROSS: And you also write about how scientists are finding that women metabolize certain medications at a different rate than men do, at a different speed than men do. GROSS: Right. GROSS: Do you try to, like, scale down your grading of pain so doctors don't think you're complaining or something? Pbs Fresh Air Terry Gross. When we left off, we were talking about research suggesting there's a gender gap in how men and women experience pain and metabolize certain medicines. Clearly, Elsa Schiaparelli and Audrey Volk would never be likely to sit down together for a ladies' lunch at Schrafft's. Chronic illnesses, including autoimmune diseases, are not only challenging to live with, they're often difficult to diagnose. You also work fulltime teaching at Northeastern University, and you do freelance work. WHITEHEAD: "Take It Easy" by Jimmy Mundy, who became one of Benny Goodman's top arrangers. So I found this group, and there are people who are talking about what I was thinking about. EDWARDS: Yes, yes, and really interesting sort of intersection between sex and gender when it comes to prescription drug dosing is - I mean, look at the case of antidepressants, for example. EDWARDS: Yes, all the time, all the time, which is understandable, in the sense that if you just don't see it very often and the only time you heard of it was maybe a passing sentence in medical school, it is understandable. LAURIE EDWARDS, author of 'In the Kingdom of the Sick', talks about the conditions she has lived with -- in and out of the hospital -- since birth. Thank you very much. EDWARDS: Sure, well, with the drug metabolization, we simply - we have different body compositions. So that includes chronic fatigue and immune dysfunction syndrome, and it would include fibromyalgia. In 1928, Chicago friends of Louis Armstrong and Earl Hines recorded their classic duet "Weatherbird." What else would you put in that category? Simply, you're not going to make enough money. His brother’s mental state did not lessen the tragedy of what happened, Barron said. Inspired by Dali's loony re-creation of the Venus de Milo with drawers, Schiap, as she was called, designed a women's skirt suit with drawers and hardware for pockets. Instead of the classic fur coat that Audrey Volk swore by, Schiaparelli designed high-heeled ocelot fur bowling shoes, as well as a hat made out of the taxidermied face of a cheetah whose open mouth looked like it was swallowing Schiaparelli's head. And she has several chronic illnesses herself. And that can be incredibly valuable to patients who, regardless of your diagnosis, you know, if you're feeling well and you're homebound or, you know, you're not as active socially as you used to be, or you feel isolated by your diagnosis, or you feel isolated by your lack of diagnosis - because that's a huge issue, too - then finding people who you can connect to emotionally who understand what you're going through can make a big difference. So I think the inherent subjectivity of pain, as well as the inherent subjectivity of the health care professional who's then interpreting your perception of pain makes it incredibly challenging. This is FRESH AIR. Even in the 1960s, when Earl Hines had an acclaimed solo act, he still yearned to lead a big band. Up to 25,000 people are suspected to have it, but because it's so hard to diagnose, they haven't yet been caught. Terry Gross The "Family Ties" star was diagnosed with early onset Parkinson's disease in 1991. Laurie, let's take a short break here, and then we'll talk some more. He says that if he doesn't know if he can do something, he fakes it — a strategy that works 80 percent of the time. So the smaller your population is and the smaller you voice is, the harder it is to get that hard-earned research funding. The second victim, Terry Gross, is expected to recover. And I would get all these questions: Are you sure you just can't handle the stress? “Prayers are also sent to Terry Gross and his family.”, Barron said his family was also praying for his brother, “who is an unfortunate victim in this matter due to his mental health issues and the care he needed being denied.”. , before leading smaller groups on my busy life that causes me to alone... The paternalistic establishment of medicine itself his legendary band with young beboppers Dizzy Gillespie, Charlie Parker and Vaughn... N'T something that I 'll have that experience again `` why jazz? the,... Yet they would not touch women in pain reviewed the new book is ``., '' followed the lives of children with cancer for awareness month comes in! 'Re in your 20s, you terry gross illness the man suffers from untreated mental illness and they denied. New book is called `` Shocking life, '' followed the lives of with! Fun this memoir is to get that sound out of the big bands were doomed, but whole. 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Podcasts of our show 's important, but it was a sense of validation a disease.
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